National Strategic Plan for Rare Diseases of Iran
The providing and editing of the national rare diseases document is one of the most vital activities of the Rare Diseases Foundation, and in this regard, the Rare Diseases Foundation of Iran, with a lot of endeavor and follow-up, and with the participation and cooperation of the professors and expertise of the Foundation and other universities of medical sciences, prepared and compiled the National Document of Rare Diseases of Iran, which after being approved by the Secretariat of the Supreme Council of Health and Food Safety and the cooperation and collaboration of the honorable officials of that ministry and other related institutions, was finally approved by the honorable president and announced. Undoubtedly, the declaration of this document can be a very huge and effective step in determining the duties of the institutions and beneficiaries related to these patients, providing services to rare patients and their families, and solving the problems of these patient respectfully
International Day of rare diseases 2018
- A Tribute to RARE DISEASE DAY
- February 26th 2017– IICC
- Venue: IRIB International Conference Center (IICC)
International Day of rare diseases 2017
- A Tribute to RARE DISEASE DAY
- February 26th 2017
- Venue: IRIB International Conference Center (IICC)
International Day of rare diseases 2016
- A Tribute to RARE DISEASE DAY
- February 28th 2016
- Venue: IRIB International Conference Center (IICC)
International Day of rare diseases 2015
- A Tribute to RARE DISEASE DAY
- February 27th 2015 – Tehran Summit Hall
International Day of rare diseases 2014
- A Tribute to RARE DISEASE DAY
- February 28th 2014
- Venue: Milad Tower International Conference Hall
International Day of rare diseases 2013
- A Tribute to RARE DISEASE DAY
- February 27th 2013
- Venue: IRIB International Conference Center (IICC)
International Day of rare diseases 2012
- A Tribute to RARE DISEASE DAY
- February 28th 2012 – IRIB International Conference Center (IICC)
International Day of rare diseases 2011
- A Tribute to RARE DISEASE DAY
- February 28th 2011
- Venue: IRIB International Conference Center (IICC)
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