In November 2011 Dr. Ms. Moazenzadeh started a series of activities aiming to bring families of the EB affected patients together in order for them to exchange their experiences on the methods of their care for the EB patients and to become familiar with the relevant new ones. During the sessions for exchange of experiences Dr. Ms. Mahsooni, a prominent pharmacist, presented a cream made by her of coriander that was very good effect on the EB caused bruises. It is to be mentioned that in the course of her activities Dr. Ms. Mahsooni has made lots of efforts to produce the desired formula in order to relieve pains of the EB affected patients using the Iranian traditional medicine.
Amyotrophic Lateral sclerosis (ALS) is a severe rare disease affecting nerves connecting the brain to the muscles. In this disease the affected nerve cells fail to maintain the vital communication between the brain and the voluntary muscles, therefore, the muscles gradually weaken, start to twitch and waste away (atrophy) and eventually become totally disabled.
The Alopecia Society intends to support alopecia areata affected individuals providing them with psychological and social assistance. The support and assistance provided by the society are based on the settlement of the internal psychological conflicts of the patients, promotion of acceptance skills (on the complications and symptoms of Alopecia) self-esteem, positive attitude, increasing of hope, modification of failed approaches and vision towards the body…
Neurodegeneration with Brain Iron Accumulation (NBIA) is a group of rare, genetic neurological disorders characterized by abnormal accumulation of iron in the basal ganglia. This disease is a genetic disorder that typically follows an autosomal recessive inheritance pattern. Main clinical symptoms of this disease are disorders in function of muscles particularly with respect to movements of organs of the affected individual. Non-voluntary congestion and contraction of the muscles cause movement abnormalities, some very painful.