Neurofibromatosis is a genetic disease that affects nerves and the skin. In Neurofibromatosis benign and non-cancerous tumors grow across the nerve fibers and such a growth will lead to emergence of some disorders in the skin and bones.
This society was established in 2016 with the support extended by the Rare Diseases Foundation of Iran and presently is managed by Ms. Marjan Mansouri, Mr. Hassan Yazdazni, and Dr. Ms. Leyla Jooybari.