The providing and editing of the national rare diseases document is one of the most vital activities of the Rare Diseases Foundation, and in this regard, the Rare Diseases Foundation of Iran, with a lot of endeavor and follow-up, and with the participation and cooperation of the professors and expertise of the Foundation and other universities of medical sciences, prepared and compiled the National Document of Rare Diseases of Iran, which after being approved by the Secretariat of the Supreme Council of Health and Food Safety and the cooperation and collaboration of the honorable officials of that ministry and other related institutions, was finally approved by the honorable president and announced. Undoubtedly, the declaration of this document can be a very huge and effective step in determining the duties of the institutions and beneficiaries related to these patients, providing services to rare patients and their families, and solving the problems of these patient respectfully
*Corresponding Author : Dr. Hamid Reza Edraki Rare Diseases Foundation of Iran (RADOIR), Iran Tel: +98-912-130-1258, E-mail: dredraki@gmail.com
Received: August 16, 2018 Accepted: September 27, 2018 Published: October 01, 2018
Citation:Edraki HR (2018) Fetal MRI in Early Diagnosis of Rare Disease in Brain. J Immunol Tech Infect Dis 7:2. doi: 10.4172/2329-9541.1000163
Abstract
A practical hands-on approach for using MRI techniques is provided to promote further fetal pathological conditions. This method of prenatal MRI diagnosis is done through the available literature revision. Apart from the findings and artifacts and numerous high-quality illustrations, the implications of fetal MRI based on medico-legal and ethical viewpoints has increased significantly
Managing Director at Rare Diseases Foundation of Iran (RADOIR)
The state of medical imaging in detecting COVID-19 patients is of high value. The CT scan without contrast media injection as the proposed method in diagnosis during treatment. In some cases, HRCT of lung references is recommended for higher penetration and finer levels, but epidemic and pandemic as well as the high range of X-ray exposition, applying the same method is to be investigated.
The most common sign and symptom of COVID-19 will be ground glass opacity (GGO) of lowers lobes of lungs and specially posterior and lateral segments in lungs in neighboring of chest thoracic wall or pleural cavity which is usually observed 5 days after disease appearance. Since the volumetric mass of the virus is very high and penetrates in lower areas and ends up to infectious and inflammatory changes.
Apart from this important symptom, there are other signs as haziness, consolidation, fibrotic band, crazy paving, speculation of the lesion.
The Assessment of Medical Imaging in COVID-19 Diagnosis & Patient Evaluation
In COVID-19 patients, the pleural effusion or lymphadenopathy are rare, active haziness of developed lobar will turn into bronchopneumonia and interstitial pneumonia which are finally called as white lung.
The simple lung CT scan and not HRCT, the amount of radiation and shorter time left to HRCT. In some centers, 3D methods are also used which are of more value rather than 2D’s. During CT scan, the patient takes a deep breath (deep inhale) and keeps till the end of test and delicate axial cuts later on. The simple radiography of lungs (even digital) is of no value in diagnostic pulmonary involvement with COVID-19.
In the following table, the diagnostic protocol of COVID-19 in CT scan confirmed by The Radiological Society of North America (RSNA) and National Institute of Health (NIH), has been presented.
The Assessment of Medical Imaging in COVID-19 Diagnosis & Patient Evaluation
Patient recruitment has always been challenge for companies conducting clinical trials. Knowing how to properly engage with advocacy groups can determine whether they will treat you as a trusted partner or a necessary evil.
Background: The circadian rhythm regulation plays a crucial role in people`s healthy lives affected by factors consisting of cosmic events related to the universe and earth, environmental factors (light, night and day duration, seasons) and lifestyles. These factors changes lead to disturbance of circadian rhythm and it causes increasing the incidence of mental diseases like depression and physiological problems like cancers, cardiovascular disease and diabetes.
A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry.Mazzucato M, Visonà Dalla Pozza L, Manea S, Minichiello C, Facchin P.
After successful publication of the “Nedaye Nader (Voice of Rare) ” specialized magazine with the rare diseases as its main theme the Foundation, in line with its social mandate in promoting the health quality in different social communities, attempted to publish the “Safire Salamat ) Messenger of Health)” monthly magazine.
