The first NF Conference was held on last Thursday hosting NF patients and members, social and scientific patient supporters and advocates.
The first session for developing strategic plan for rare diseases of Iran was held at TUMS headquarters office on last Sunday 16th June, 2019 with the presence of Dr. M.A. Sahraiean the scientific research deputy of TUMS, , Dr. Mahdi Norouzi, the scientific research deputy of RADOIR, Dr. Shamshiri, Epidemologist, Dr. Shadab Salehpour, pediatric endocrinologist, Prof. D. Farhoud, the father of genetic science of Iranand Dr. Siyamak Abdi, neurologist and Dr. H. R. Edraki, RADOIR managing director who is the core member to develop the national strategic plan for rare diseases in Iran.
Rare Diseases Foundation of Iran was approved as associate member at the International Society for Neonatal Screening
RADOIR’s board of directors had a meeting session with Dr. Namaki, the minister of health on Monday April 15th, 2019 at MOH – Iran to present RADOIR’s 10 year activity report .
Rare Diseases Societies joined greeting session at Rare Diseases Foundation of Iran for the Iranian new year and met with the chairman and the managing director of RADOIR
The Iranian minister of health authorized Tehran Medical University (TUMS) to establish the national strategic plan for rare diseases in cooperation with Rare Diseases Foundation of Iran
IUMS was appreciated for its collaboration in organizing RADOIR’s scientific seminar at the 10th International Congress on the Occasion of Rare Disease Day.
RADOIR 10th Rare Disease Day with the theme, “Rare but Not Alone!” was held in March 2nd, 2019 at International Razi Conference Center (IRCC).
On the occasion of Rare Disease Day 2019, a scientific seminar was held with the presence of the academic professionals & students at 10th RDOIR’s Rare Diseases Congress.